We can’t help but wonder how many more steps our daughter, 6, will take, says mother of six-year-old girl with muscle wasting disease that is slowly destroying her mobility

Sophie and Mike Howes from Wiltshire, are joining calls to have spinal ­muscular atrophy (SMA) added to the newborn blood tests so that children like Anouk, six, can be diagnosed earlier. Sophie and Mike Howes from Wiltshire, are joining calls to have spinal ­muscular atrophy (SMA) added to the newborn blood tests so that children like Anouk, six, can be diagnosed earlier.